Resources

resourcesWe have found the following organizations to be invaluable as resources in assisting us with our needs as well as in providing ideas at the time of Aliciaʼs sudden and life-changing illness.

I hope that you will find them of use as well, if you ever have a need for such services.

I encourage you also to contact any of these organizations to see how you may contribute to their ongoing missions. 

Angel Flight
www.angelflight.org
Arrange free flights so children and adults can access medical care. (There are multiple websites, depending on your location in the US) www.angelflight.com (services primarily to the Heartland) www.angelflightne.org (services to the Northeast United States)

Brain Injury Association of America
1608 Spring Hill Rd., Suite 110, Vienna, VA. 22182 (703)761-0750
www.biausa.org

Brain Injury Support Group on FaceBook
http:/supportforbraininjuries

Brain Injury Resource Center
www.headinjury.com
(206) 621-8558
PO Box 84151, Seattle, WA 98125-5451
Promotes proactive involvement, knowledge, self-awareness, and self-advocacy following a brain injury.

Brainline.org
Preventing, treating, and living with traumatic brain injuries. Providing resources for persons with TBIs and family, friends, and professionals.
Resource directory, personal stories, research updates

Caring Bridge
www.caringbridge.org/howwehelp
A nonprofit online service set up to help any family going through a health event. Allows each family and support group a safe, personal space to communicate information to a wide circle of people. They can post on daily journals, and the guestbook allows visitors to send the family messages of love and encouragement.

Centers for Independent Living, United States

http://www.ilusa.com/links/ilcenters.htm

Centerwatch

http://www.centerwatch.com/

CenterWatch is the leading trusted source for global clinical trial information.

Circle of Care
www.thecircleofcare.org
Providing support and resources to families of children with cancer.

Clinicaltrials.gov
A registry of publicly and privately supported studies of human participants conducted around the world: a service of the National Institutes of Health (NIH).

Daily Strength: Brain Injury Online Support Group:  A network of people sharing their knowledge, experience, and support for a number of medical conditions, through online support groups: making friends, journaling, tracking goals, sharing…

Disabled-Friendly Universities

http://www.collegexpress.com/lists/list/the-experts-choice-colleges-that-are-particularly-able-to-accommodate-a-student-in-a-wheelchair/402/

Rehabilitation Hospitals

Gaylord Hospital – Connecticut

Blythedale Children’s Hospital, Valhalla, NY

Hospital for Special Care – Connecticut

U.S News & World Reports List of Best Rehabilitation Hospitals in the US

Ronald McDonald House
www.rmh-ct.org
(Links to all Ronald McDonald House online resources)
Housing provided throughout the United States and internationally, offering a home away from home for families of children being treated at nearby hospitals or health care facilities.

Wheels for the World Charity

http://www.joniandfriends.org/wheels-for-the-world/